This is Khloe and Kain’s story.
This dynamic mother and son duo have been in and out of hospital since the day Kain was born. Despite not having tubes and IVs running through him on a day-to-day basis, Kain is battling every day of his life to stay alive. Can you tell? Sometimes battles leave scars, and Kain has had his fair share of challenges in his short four years on this planet.
Why does Kain’s story matter? Kain, a 4-year-old spitfire of energy and light, has spent many of his days and milestone moments in his life hooked up to monitors at SickKids Hospital in Toronto, ON. Hospitals like SickKids treat over 4,900 children each day at Children’s Miracle Network member hospitals across Canada.
If you don’t know Kain, odds are you know someone who has been treated at a children’s hospital, or you’ve been a patient yourself.
This year, Lids Canada has partnered with Children’s Miracle Network to launch an in-store campaign to raise funds for children’s hospitals across Canada to give back to their customers and families in their communities that are battling their own health challenges.
Get to know Kain through the eyes of his mother, Khloe, and their inspirational story here:
Kain was born with multiple congenital heart defects. If left untreated without surgical intervention, he would have passed away hours after entering the world. Kain was born with Tricuspud Artresia, transposition of the great arteries, atrial septal defect, ventricle septal defect, and interrupted aortic arch. Immediately following Kain’s birth, he was transported to SickKids hospital.
“It was within the first 24 hours of his life that I was told his first open heart surgery would happen the next day”
Within the first moments of his life, he was hooked up to heart monitors, oxygen saturation monitors and IV medications to keep him alive until surgery was booked. It was within the first 24 hours of his life that I was told his first open heart surgery would happen the next day, leaving very little time to emotionally prepare for it. At 36 hours old, I handed my 7lb 6oz son over to a nurse in hopes that he would return to me after the surgery was complete. After a 10 week stay and many complications in the hospital, Kain had gained enough strength to be allowed to go home. Once again, at 5.5 months old, Kain was ready to go for his second open heart surgery.
What is important for people to remember about congenital heart defects and these surgeries is that it does not ‘cure or fix’ him. They are not able to be cured. These surgeries are palliative procedures for the surgical management of his heart. His heart will be modified to work to the best of its ability and allow us as much time with him as possible.
“…he always has is a sparkle in his eye, that is what keeps me going.”
One thing about Kain is that he remains strong through all of it–every poke, every test, and every surgery. He usually has a smile on his face and doesn’t even cry for bloodwork anymore. But one thing he always has is a sparkle in his eye, that is what keeps me going.